The April 2013 Links Digest highlights a NYSARC blog post discussing the framework for OPWDD's managed care system as developed during the 2013-2014 budget process. This edition also includes a parent's account of how she learned to partner with geneticists, an interesting journal article regarding the connection between health homes and parental coping, and a list of key questions those considering college should ask of the Disability Services Office on campus.
The March 2013 issue of Links Digest includes information on the opportunity for public comment on proposed regulations for the Justice Center, a presentation by the Medicaid Redesign Team on the Governor's 30-day budget amendments, and news regarding a new HIPAA rule which will expand patient privacy protections and allow access to medical records in electronic format.
The February edition of Links Digest contains information about the Governor's 30-day budget amendments which are due February 22nd, an update on providing input to the Olmstead Plan Development and Implementation Cabinet, and clarification on the use of Family and Medical Leave for children 18 years of age or older. It also includes information on changes to the parental consent requirements school districts must comply with in order to access Medicaid reimbursement and Rare Disease Day events taking place in NYS on February 28th.
The January edition of Links Digest includes information on Governor Cuomo's 2013-2014 State Budget, archived webinars on Emergency Preparedness and Newborn Screening, and updates on coverage for orthopedic footwear, compression stockings, and ABA services.
A guide for families and friends of people with developmental disabilities
6th edition, 2006, New York State Developmental Disabilities Planning Council. Most families provide lifelong supports to their family members with a developmental disability. However, if you are like most families you have not planned very far into the future. In fact, seventy-five percent of families with a daughter/son with a disability never plan at all.Download PDF