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Links Digest #131 April 2013

The April 2013 Links Digest highlights a NYSARC blog post discussing the framework for OPWDD's managed care system as developed during the 2013-2014 budget process. This edition also includes a parent's account of how she learned to partner with geneticists, an interesting journal article regarding the connection between health homes and parental coping, and a list of key questions those considering college should ask of the Disability Services Office on campus.

Links Digest #130 March 2013

The March 2013 issue of Links Digest includes information on the opportunity for public comment on proposed regulations for the Justice Center, a presentation by the Medicaid Redesign Team on the Governor's 30-day budget amendments, and news regarding a new HIPAA rule which will expand patient privacy protections and allow access to medical records in electronic format.

Links Digest #129 February 2013

The February edition of Links Digest contains information about the Governor's 30-day budget amendments which are due February 22nd, an update on providing input to the Olmstead Plan Development and Implementation Cabinet, and clarification on the use of Family and Medical Leave for children 18 years of age or older. It also includes information on changes to the parental consent requirements school districts must comply with in order to access Medicaid reimbursement and Rare Disease Day events taking place in NYS on February 28th.

Links Digest #128 January 2013

The January edition of Links Digest includes information on Governor Cuomo's 2013-2014 State Budget, archived webinars on Emergency Preparedness and Newborn Screening, and updates on coverage for orthopedic footwear, compression stockings, and ABA services.

Parent to Parent of NYS Brochure

Links Digest #127 December 2012

Links Digest #126 November 2012

Links Digest #123 August 2012

Links Digest #124 September 2012

Links Digest #122 July 2012

Links Digest #121 June 2012

Links Digest #118 March 2012

Links Digest #120 May 2012

Links Digest #116 January 2012

Links Digest #117 February 2012

Links Digest #119 April 2012

Planning for the Future

A guide for families and friends of people with developmental disabilities

6th edition, 2006, New York State Developmental Disabilities Planning Council. Most families provide lifelong supports to their family members with a developmental disability. However, if you are like most families you have not planned very far into the future. In fact, seventy-five percent of families with a daughter/son with a disability never plan at all.

Guide to Services Administered through NYS OMRDD in Spanish - La Guía para Entender Las Ayudas y Los

Links Digest #125 October 2012

When Your Child Has Been Diagnosed with a Disability or Chronic Condition

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Family Voices

A Family to Family Health Care Information & Education Center.

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