Web links to information on accessing services through NYS Office for People with Developmental Disabilities (OPWDD).
On June 1, 2013 Disability Rights New York (Disability Advocates, Inc.) (DRNY) became New York State’s designated Protection and Advocacy System and Client Assistance Program (P&A/CAP). Free services include investigating abuse and neglect complaints; advice/proefessional assistance; support in pursuing administrative remedies; technical assistance; negotiation/mediation; legal assistance; information/referral; and training. For more information, visit http://www.disability-advocates.org/pro_dev.html
This month's Links Digest includes an issue brief on self-directed services within a managed care model and news of an insurer dropping participation in Medicaid managed care plans. It also contains information about implementation of the Affordable Care Act in NYS, notification that youth who have aged out of foster care may be eligible for Medicaid coverage until age 26 regardless of income, and a link to The Advocacy Atlas, a new resource tool for families.
The September Links Digest starts a series on accessing health insurance through the New York State of Health Marketplace. Additionally, it includes an update on the Fully Integrated Duals Advantage demonstration (care coordination for those with both Medicare and Medicaid), information on the federal regulations pertaining to transportation by school districts, and a report on low flu vaccination rates for children with either intellectual disability or epilepsy, two high risk categories for flu complications.
Family Caregivers of Children with Special Health Care Needs: The Need for Caregiver Support as Truly Family-Centered Care is a fact sheet by MN LEND Program
When the U.S. government, programs, providers, and health care insurers fail to recognize the importance of family caregiver support, the family caregiver lacks important supports—respite care, time, mobility, money, and supportive networks—which reduce her/his ability to self-care with personal health visits, mental health services, support groups, social support, and personal time to de-stress. This impacts the health and well-being of the CYSHCN and the entire family throughout the life course. Issues, need, and facts ….
Compiled for the start of the 2013-14 school year by Parent to Parent of New York State.
The importance of assessing and providing for the needs of family caregivers is highlighted in this month's Links Digest, along with news regarding a crisis in Early Intervention, insurance coverage for ABA (applied behavior analysis), and the latest on implementation of the Affordable Care Act in NYS.
The July edition of Links Digest contains information about the approved 2014 rates for health insurance plans that will be carried on the Health Benefit Exchange, OPWDD's plans for transforming employment opportunities for individuals with disabilities, and a study on compliance by specialty physicians with ADHD treatment guidelines.
Self Determination/CSS in New York has created a means of developing the potential for individualized, self-directed services. It offers the opportunity to design services based on an individual’s desires and needs as identified in a Person Centered Plan. It is a mechanism developed by NYS OPWDD (Office for People with Developmental Disabilities).
To read more, download the PDF.
The June edition of the Links Digest includes information about the agreement between NYS and Centers for Medicare and Medicaid Services to transform the OPWDD service system. Additionally, recognize some great Dads and cast your vote in the Family Voices' Father's Day contest.
Learn more about New York's Health Benefit Exchange, the insurance marketplace created by the Affordable Care Act, in the May edition of the Links Digest. The Health Benefit Exchange will begin enrollment in October for coverage effective January 1, 2014.
The April 2013 Links Digest highlights a NYSARC blog post discussing the framework for OPWDD's managed care system as developed during the 2013-2014 budget process. This edition also includes a parent's account of how she learned to partner with geneticists, an interesting journal article regarding the connection between health homes and parental coping, and a list of key questions those considering college should ask of the Disability Services Office on campus.
The March 2013 issue of Links Digest includes information on the opportunity for public comment on proposed regulations for the Justice Center, a presentation by the Medicaid Redesign Team on the Governor's 30-day budget amendments, and news regarding a new HIPAA rule which will expand patient privacy protections and allow access to medical records in electronic format.
The February edition of Links Digest contains information about the Governor's 30-day budget amendments which are due February 22nd, an update on providing input to the Olmstead Plan Development and Implementation Cabinet, and clarification on the use of Family and Medical Leave for children 18 years of age or older. It also includes information on changes to the parental consent requirements school districts must comply with in order to access Medicaid reimbursement and Rare Disease Day events taking place in NYS on February 28th.
The January edition of Links Digest includes information on Governor Cuomo's 2013-2014 State Budget, archived webinars on Emergency Preparedness and Newborn Screening, and updates on coverage for orthopedic footwear, compression stockings, and ABA services.