Parent To Parent of NYS


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Parent to Parent of NYS in the News

Michele Juda recently sat down with Phil Bayly, anchor of News Channel 13 (WNYT) and host of Forum 13, for a discussion about Parent to Parent of NYS' Parent Matching program.

Regional Coordinator Position in Hudson Valley Office

We are seeking a part-time Regional Coordinator in our Hudson Valley office, located at Westchester Institute for Human Development.  Additional information available through the link below.

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YOUTH POWER is seeking youth between the ages of 14-24

YOUTH POWER! is seeking youth to be members of a peer-run statewide planning group for AMPLIFY-NY! Youth and young adults with developmental and other disabilities ages 14-24 are invited to join this group to help design and plan regional youth leadership forums across the state, beginning with the pilot forum in the Capital District. Young people who are interested in joining this group can apply by clicking here.

Members of the planning group will also have the opportunity to be selected for a scholarship to attend the University of YOUTH POWER! (UYP), the premiere for-youth-by-youth social justice conference modeled after a college experience. Planning group members must be 18+ to attend UYP. For more information on the AMPLIFY-NY initiative, please visit

New York State Population Needs Assessment

In 2015 the Office of People with Developmental Disabilities Balancing Incentive Program provided St. Mary's Healthcare System for Children a grant to assess the need for services for the aging out medically fragile population in New York State, and to develop a pilot group home model for young adults with medical fragility. Young adults with complex care and medical fragility frequently face challenges finding care settings prepared to meet their unique needs. With limited skilled nursing facilities that serve their age demographic and a few group homes capable of meeting their complex clinical needs these young adults are often relegated to social isolation in institutional settings intended for the elderly or left to be cared for by their aging parents struggling with inadequate support.

Using this funding opportunity to carry forth project goals in tandem with policy and capital project components St. Mary's partnered with Family Residences and Essential Enterprises (FREE) and developed a model for a medically supervised IRA to ensure that young adults aging out of pediatric settings - both at St. Mary's skilled nursing facility, and throughout the state - receive long term services and supports in an environment that is age appropriate, enriching, family-centered, and community-based. The pilot residence which is anticipated to open in July 2017 is designed to provided support to eight young adults who are medically fragile and require 24/7 care.

In addition, St. Mary's Healthcare System for Children in partnership with the healthcare research firm of Manatt, Phelps and Phillips completed a formal assessment of the medically fragile population in New York State. Attached below are the results of this analysis in the enclosed report; Children and Young Adults with Medical Fragility; A Population Needs Assessment.

Report: Children and Young Adults with Medical Fragility, A Population Needs Assessment

A Family to Family Health Care Information & Education Center.

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