In 2015 the Office of People with Developmental Disabilities Balancing Incentive Program provided St. Mary's Healthcare System for Children a grant to assess the need for services for the aging out medically fragile population in New York State, and to develop a pilot group home model for young adults with medical fragility. Young adults with complex care and medical fragility frequently face challenges finding care settings prepared to meet their unique needs. With limited skilled nursing facilities that serve their age demographic and a few group homes capable of meeting their complex clinical needs these young adults are often relegated to social isolation in institutional settings intended for the elderly or left to be cared for by their aging parents struggling with inadequate support.
Using this funding opportunity to carry forth project goals in tandem with policy and capital project components St. Mary's partnered with Family Residences and Essential Enterprises (FREE) and developed a model for a medically supervised IRA to ensure that young adults aging out of pediatric settings - both at St. Mary's skilled nursing facility, and throughout the state - receive long term services and supports in an environment that is age appropriate, enriching, family-centered, and community-based. The pilot residence which is anticipated to open in July 2017 is designed to provided support to eight young adults who are medically fragile and require 24/7 care.
In addition, St. Mary's Healthcare System for Children in partnership with the healthcare research firm of Manatt, Phelps and Phillips completed a formal assessment of the medically fragile population in New York State. Attached below are the results of this analysis in the enclosed report; Children and Young Adults with Medical Fragility; A Population Needs Assessment.