Parent To Parent of NYS


Western Region News

Seeking Families of Children with Medical Complexity for Focus Groups

Location: Women & Children's Hospital of Buffalo

Dates: Tuesday, June 27, 2017 and Thursday, June 29, 2017

We are looking to understand how families can get all types of needed care for their children, whether it is in the hospital, school, pharmacy, therapies, or anything in the community where you live. We are seeking up to ten families of children who have medical complexity. This includes any child who has at least two chronic conditions and sees at least two specialists of any type. The focus groups will last for approximately 90 minutes, and participants will receive a $25 gift card in appreciation for their time. If you are interested, please contact Nancy Gushue, Division of General Pediatrics, at or 716.878.7277 by June 15. Additional questions may be directed to Dennis Kuo, MD, MHS, Project Director, at 125 Hodge Avenue, Buffalo, NY 14222, 716.878.1098.

Seeking Families of Children with Medical Complexity for Focus Groups - FLYER

Advocate – the Western NY Family Support Services Consumer Councils Need You.

Parents of children with a developmental disability are needed to participate on the Family Support Consumer Council to develop and monitor family support services for the 7 county region of the Western NY DDSO

The Family Support Consumer Councils work in partnership with the Developmental Disabilities Services Offices to develop and monitor policies, services and supports to enhance a family's ability to provide in-home care to their family member with a developmental disability. Services range from counseling and training, respite, recreation, to family reimbursement for the purchases of goods and services.   For further information about becoming a Council member, contact Susan Styborski, Family Support Services Coordinator, at 716-517-3610.

A Family to Family Health Care Information & Education Center.

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