Parent To Parent of NYS


Southern Tier Resources

eiFamilies Website; Part of the Family Initiative Coordination Services Project at the Just Kids

EiFamilies.jpgThe Bureau of Early Intervention and the Family Initiative Coordination Services Project announces a redesigned and updated website for the Family Initiative Coordination Services Project, known as Partners. This website, a part of New York State Department of Health Bureau of Early Intervention sponsored contract with Just Kids Early Childhood Learning Center.

The website redesign includes:

  • New and updated information, resources and supports on a variety of Early Intervention related topics for families
  • A drop box feature which allows a user to view content translated instantly into one of 104 different languages
  • Information on Early Intervention Partners Training for parents
  • Helpful links to State and National programs and organizations
  • Early Intervention Program Frequently Asked Questions and Answers

Visit the site

Family Support Services Directory

2017 OPWDD Region 1--Finger Lakes DDRO Family Support Services Directory of Agencies & Programs

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Housing Guide developed by Westchester Institute on Human Development

This housing guide, created by John Maltey and his staff, is quite comprehensive.  Many of the items and information contained within the guide can be applied to any county in NYS. 

Go to:

In the Driver’s Seat: Support Staff Registry

In the Driver’s Seat is excited to announce a new opportunity in Region 1 to connect families and individuals with developmental disabilities to support staff. Whether you are seeking staff to provide OPWDD funded services such as respite or community habilitation (agency supported and/or self-directed) or are interested in part-
time work providing direct service to someone with a developmental disability, this Registry can assist in providing those connections. This is a free service and is available to anyone seeking staff or interested in providing support, regardless of agency affiliation.

For more information email In the Driver's Seat at or call 585-671-1214, and see the flyer linked below.

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Visit the site

Online Concussion Support Group

Local online support group for those with a concussion. 

Facilitator: Steve Hicks


START (Southern Tier Autism Resources Team)

START (Southern Tier Autism Resources Team) group is a parent run and organized autism support group for those families living with an autism spectrum disorder.   Childcare is provided in the Parent Resource Center during meetings by trained staff from the Arc of Steuben. 

Location: United Way conference room above the Corning Library, Corning, NY  

Facilitator: Robin Drury

Contact: by phone: 607-562-3607 or by email:  

The Pieces of the Puzzle Support Group

For parents/caregivers of children and/or teens with special needs.  This group discusses issues and hopes to help families find positive solutions as well as family supports available in the area.  Adults with disabilities looking for assistance are also welcome.

Meetings:  Held the 3rd Tuesday of every month

Time:  6:00-7:00 PM

Location: Cohocton Public Library, 8 Maple Avenue, Cohocton, NY 14826

Facilitator: Maria Ammarell

Contact: by phone: 585-384-5384 or by email:

Total Communication Outreach

If you or someone you know is struggling with communication due to, but not limited to, Autism, Deafness, Selective Mutism, being non-verbal, Auditory Processing Disorder, Anxiety, or a Physical disability, then Total Communication Outreach (T.C.O.) is for you.  T.C.O. is a free, family-run support group for those looking for a consultant, an advocate, education presentations, resources, additional contacts, American Sign Language lessons, or just a "listening ear."  Support group meetings 3 times a month, individual assigned sessions and we are available via Facebook daily.

Meetings and Locations:  2nd Monday of every month, ASL Chat Night at Barnes and Noble Cafe

                                         3rd Monday of every month, Arnot Mall (food court by movie theater)

                                         4th Monday of every month, Christian Life Chuch, 2355 Bailey Creek Road, Corning (activities, snacks & drinks provided to children at this meeting)

Time: 6:00-7:30 PM

Facilitator: Chuck Dougherty

Contact: or Group can be found on Facebook at "Looking Through Deaf/Autistic Eyes"

A Family to Family Health Care Information & Education Center.

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