Parent To Parent of NYS


Southern Tier Resources

AIM Independent Living Center

Founded in 1979, AIM Independent Living Center is a nonprofit organization that provides supports and services to people with disabilities. AIM serves people of all ages, with any type of disability. AIM promotes independence, integration and self-determination. In addition to serving the individual, AIM provides assistance and consultation to families and the greater community.

To view upcoming events, please visit their website's calendar.

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AspireHope NY (formerly Finger Lakes Parent Network)

AspireHope NY formerly FLPN Inc is a parent run, youth guided, not for profit organization supporting individuals living with disabilities.

To access their FaceBook page, please visit:

To learn more, please visit their website.  (For now, this will take you to the Finger Lakes Parent Network page.)" target="_blank">Visit the site

CAMP—Lions Camp Badger 2019

Open to youth and young adults from every region of NY state.

Junior Badgers--ages 12-20 (Intellectual Disabilities), Friday 7/5--Sunday 7/14

Buddy Badgers 1:1--ages 12+ (Intellectual Disabilities--Highly Individualized), Wednesday, 7/17--Sunday 7/21

Super Senior Badgers--ages 35+ (Intellectual Disabilities), Wednesday, 7/17--Sunday 7/21

Senior Badgers--ages 21-35 (Intellectual Disabilities), Wednesday 7/24--Friday 8/2

Breakthrough Badgers--ages 12-17 (Emotional Disabilities), Sunday 8/4--Thursday 8/8

Optional Day Camp available for all sessions except Breakthrough Badgers.  *Day Camps go from 9:15 am to 5:15 pm, M-F.

*Day camp participants MUST have transportation to and from camp each day.

Lions Camp Badger offers two-week long summer programs for campers with functional differences (such as intellectual disability, autism, cerebral palsy, etc.). Campers are grouped by age (12-20 year olds in one session, 21+ in another). We welcome nonverbal campers and encourage the use of communication devices! We also work with families whose campers may need to bring 1:1 support with them. It is recommended these families start the registration process very early, as it takes some time to make arrangements to best meet the needs of their campers. We will also offer a five-day camp program for individuals ages 12-17 with behavioral/emotional disabilities!

Lions Camp Badger is staffed by certified special education teachers, skilled medical professionals, and dedicated, energetic college students. Prior to camp, they have all undergone extensive training in safety, CPR/first aid, special needs, behavior management, and communication support. Staff and volunteers who work directly with campers undergo extensive security checks per American Camping Association guidelines. Parents may choose to receive frequent updates on their camper throughout the session. We understand how difficult it can be to put your loved one in the hands of others, and we do everything possible to assure they receive exceptional care and attention while they are with us.


For more information, please visit the website:, call 1-800-232-7060 or 707-589-4800, or email

To view the 2019 brochure, please visit:

Visit the site

CAMP—Wellness G.I.F.T.S. 2019 Retreats

Opportunities for Camping Retreats by non-profit organization that "Gives Inspiration for the Soul (G.I.F.T.S.)."  This is for families who have members with special needs, specifically focusing on individuals with developmental disabilities, of any age, living at home with their parents or caregivers.  Retreats provide educational, therapeutic ad recreational activities for the entire family.   

Wellness G.I.F.T.S. is hosted by Hickory Hills Family Camp, located at 7531 County Route 13, Bath, NY 14810

To learn more, contact Nicole Blough, Executive Director, 607-684-3243 (Fax 607-776-9218)

To print out registration forms, go to: (Please note that you should print out and mail the completed forms.)


June 14-16, 2019

July 26-28, 2019

August 23-25, 2019

September 21-22, 2019 (ages 18 & up)

Limited scholarships are available.

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eiFamilies Website; Part of the Family Initiative Coordination Services Project at the Just Kids

EiFamilies.jpgThe Bureau of Early Intervention and the Family Initiative Coordination Services Project announces a redesigned and updated website for the Family Initiative Coordination Services Project, known as Partners. This website, a part of New York State Department of Health Bureau of Early Intervention sponsored contract with Just Kids Early Childhood Learning Center.

The website redesign includes:

  • New and updated information, resources and supports on a variety of Early Intervention related topics for families
  • A drop box feature which allows a user to view content translated instantly into one of 104 different languages
  • Information on Early Intervention Partners Training for parents
  • Helpful links to State and National programs and organizations
  • Early Intervention Program Frequently Asked Questions and Answers

Visit the site

Family Support Services Directory

2017 OPWDD Region 1--Finger Lakes DDRO Family Support Services Directory of Agencies & Programs

Download PDF

Housing Guide developed by Westchester Institute on Human Development

This housing guide, created by John Maltey and his staff, is quite comprehensive.  Many of the items and information contained within the guide can be applied to any county in NYS. 

Go to:

In the Driver’s Seat: Support Staff Registry

In the Driver’s Seat is excited to announce a new opportunity in Region 1 to connect families and individuals with developmental disabilities to support staff. Whether you are seeking staff to provide OPWDD funded services such as respite or community habilitation (agency supported and/or self-directed) or are interested in part-
time work providing direct service to someone with a developmental disability, this Registry can assist in providing those connections. This is a free service and is available to anyone seeking staff or interested in providing support, regardless of agency affiliation.

For more information email In the Driver's Seat at or call 585-671-1214, and see the flyer linked below.

Download PDF

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Online Concussion Support Group

Local online support group for those with a concussion. 

Facilitator: Steve Hicks


Rochester Regional Center for Autism Spectrum Disorder (RRCASD)

The RRCASD is one of seven New York State regional centers for autism spectrum disorders, aimed to provide community education and technical assistance to the following counties: Cayuga, Livingston, Monroe, Onondaga, Ontario, Oswego, Schuyler, Seneca, Steuben, Wayne, Wyoming, and Yates.

The RRCASD provides various informational resources on autism spectrum disorder to families and professionals throughout the region; you can view their library of information here:

To learn more about their trainings, please visit their website." target="_blank">Visit the site

SENSORY—Sensory Sensitive Sundays at Chuck E. Cheese Restaurants

Chuck E. Cheese's is proud to support families who have children with autism and other special needs. We offer a sensory-friendly experience on the first Sunday of every month at participating locations, opening our stores two hours before their normal opening time. Our Sensory Sensory events include a trained and caring staff that work to ensure each guest has a fun-filled visit. We realize that the Chuck E. experience can be very stimulating for any child, so our mission is to create an event that allows ALL kids to be a kid.  (These were created in partnership with CARD.)

Participating locations:

  • Rochester--1000 Hylan Rd. Suite 20, Rochester, NY 14623 --OR-- 3130 West Ridge Rd., Rochester, NY 14626
  • Syracuse--3023 Erie Blvd., Syracuse, NY 13224
  • Vestal--3901 Vestal Pkwy, E. Vestal, NY 13850​" target="_blank">Visit the site

Starbridge Resources

Starbridge is a New York State Parent Training and Information Center (PTIC), serving all of New York State except the 5 boroughs of New York City and Long Island.  The Rochester-based staff serve families in the following counties: Chemung, Livingston, Monroe, Ontario, Schuyler, Seneca, Steuben, Tioga, Wayne and Yates. To speak with a Parent Education Specialists, please contact us at 585-546-1700 or use the Contact Us form.

To check their current listing of workshops or webinars, please visit their website for more information." target="_blank">Visit the site

A Family to Family Health Care Information & Education Center.

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