Parent To Parent of NYS


North Central Resources

10 Steps to Independence:  Promoting Self Determination in the Home

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ADHD Autism Psychological Services and Advocacy

We specialize in providing comprehensive, state of the science assessments, treatments, and educational services for children, adolescents, and adults with ADHD and Autism Spectrum Disorders.  We provide the highest quality of services to fit each individual needs.  Although we specialize in ADHD and Autism, we also provide general counseling services to children, adolescents and adults for disorders such as anxiety and depression. 

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Advocates Incorporated

Advocates is a not-for-profit 501(c)(3) parent-directed organization providing services to individuals with developmental disabilities and their families. As an organization, we were started by parents of children with developmental disabilities with the goal of full inclusion for their children. Our goal is to partner with individuals with developmental disabilities, their families, and the community-at-large to create opportunities for individuals to lead inclusive lives in our community. We provide advocacy, resources, information and choices to empower individuals and their families. There is no charge for any of our services.

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Our mission is to work with people of all abilities to create a fair and just community in which everyone can fully participate.

We embrace the guiding principles of independent living – that individuals with disabilities have a right to dignity, personal responsibility, and self-determination. ARISE offers advocacy and support services to people of all ages with all types of disabilities.

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ARISE & Ski is one of the longest running premier adaptive winter sports programs in the Central New York Region. We believe that all people have the right and ability to participate in recreational activities. Register to participate, sign up to volunteer, follow us on Facebook, give a gift to support inclusive winter recreation, or contact us to learn more!

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CNY SPD Parent Connections

CNY SPD Parent Connections is a support group for parents of children with sensory processing difficulties, regardless of diagnosis.  The group meets monthly at the Beacon Baptist Church on Route 31 in Clay.  For more information, email

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CNY Spreadsheet of Services

CNY Spreadsheet of Services is presented as a resource tool from NYS OPWDD Regional Office.  Provider agencies, please send an email to at when there are changes in program staff and/or their contact information.  The file is in Microsoft Excel, not PDF.

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Comprehensive List of Social Stories

Social stories or visual scripts are stories that describe with words and pictures different activities or events that happen in life in a step by step detailed way.

To see all the stories, click here:

David’s Refuge

David's Refuge is a non-profit bed and breakfast retreat for parents and guardians who care for children with special needs or with life threatening medical conditions.  As guests you will enjoy the beauty, hospitality and relaxation of a personally designed retreat in a private wing of the home where meals, recreation, and opportunities for 'unplugging' are generously provided.  David's Refuge allows parents and other caregivers much needed time to rest, reflect, and recharge from the stress of full time caregiving.  

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Developmental Disabilities Regional Offices (DDRO)

In order to assist individuals and families to make informed choices about the supports and services best suited to their needs, DDROs work with local voluntary provider agencies to improve access to and coordinate services within a region (“catchment area”).

DDROs are responsible for the following activities:

  • eligibility
  • intake
  • waiver enrollment (a Federal-State partnership which makes certain types of services available within the home or community so as to avoid placement in an institution)
  • local management of Individual and Community Supports (ICS)
  • management of resources for crisis intervention
  • advocacy
  • shared management of OPWDD statewide applications;
  • service recruitment and development for the Family Care program; and
  • programs, services and supports for aging individuals with developmental disabilities .

Eligibility for services is determined by the Developmental Disabilities Regional Offices (DDROs). Please contact the Eligibility Coordinator of the Regional Office representing the county in which the individual/family lives.

Lastly, DDROs act in a supporting role to DD State Operations Offices with regard to eligibility for others areas of statewide services including but not limited to: level of care determinations; clinical delivery and waiver service delivery; Article 16 clinics; quality improvement processes; review of audit reports for trend analysis; emergency preparedness; safety, security and maintenance; and implementation of OPWDD initiatives.

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Down Syndrome Association of CNY

The Down Syndrome Association of Central New York, Inc. is a group of parents, family and friends of individuals with Down syndrome.

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eiFamilies Website; Part of the Family Initiative Coordination Services Project at the Just Kids

EiFamilies.jpgThe Bureau of Early Intervention and the Family Initiative Coordination Services Project announces a redesigned and updated website for the Family Initiative Coordination Services Project, known as Partners. This website, a part of New York State Department of Health Bureau of Early Intervention sponsored contract with Just Kids Early Childhood Learning Center.

The website redesign includes:

  • New and updated information, resources and supports on a variety of Early Intervention related topics for families
  • A drop box feature which allows a user to view content translated instantly into one of 104 different languages
  • Information on Early Intervention Partners Training for parents
  • Helpful links to State and National programs and organizations
  • Early Intervention Program Frequently Asked Questions and Answers

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Exceptional Family Resources

Exceptional Family Resources (EFR) partners with individuals with disabilities and their families, providing services, information, advocacy and other supports to enhance lives and foster community acceptance.

Our priorities are:

To support and enhance the independence of people with disabilities.

To offer quality programs that link people to services, remove barriers and empower people.

To enter into true partnerships of mutual respect with others in order to foster community acceptance for people with disabilities.

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Families for Effective Autism Treatment of Central New York

The mission of FEAT of CNY is to provide families dealing with Autism Spectrum Disorders the support and information to: FOSTER HOPE, BUILD DREAMS and CREATE PROMISE for a bright future. For more information visit their website at

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Family Matters Support Group (It’s All About Childhood and Family, Inc)

4th Tuesday of Each Month 6:30-8:00pm at SSIC Building: 2610 South Salina Street; Suite 3; Syracuse  (phone: 382-0541)

Parent Support Group:  A free education and support group for parents with children exhibiting social, emotional, and behavioral challenges.  This is a parent driven group with a focus on identifying existing strengths/resources within the family and building upon them to promote healing, hope, and transformation.  The group will involve a trauma informed framework as well as principles of the Nurtured Heart Approach (NHA). 

Children's Group:  A skill building group, including problem-solving, social interaction, and communication.  The goal is to develop each child's character strengths-such as perseverance, self-control, responsibility, care-which will help them handle their strong emotions and the daily challenges they may face. 

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Gigi’s Playhouse

 GiGi’s Playhouses are Down syndrome awareness and educational centers that provide resources, specialized teaching, and support to individuals with Down syndrome, their families and the community. GiGi’s Playhouse centers evolved into educational centers with a focus on national awareness for Down syndrome. All of our programs are free to our families and are therapeutic in nature. Each of them are designed to work on specific skill development in several areas including speech and language, social development, and fine and gross motor skills.

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Healthy Bodies Toolkit Addresses Puberty in Adolescents with Developmental Disabilities

A new toolkit Healthy Bodies: A Parent's Guide on Puberty for Adolescents with Disabilities addresses the needs of these families and is a response to the limited number of practical resources about puberty and disabilities. The toolkit was developed by Vanderbilt University Assistant Professor of Pediatrics Cassandra Newsom, Psy.D., and trainees in the Vanderbilt Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Training Program. It has been produced and is being disseminated by the Vanderbilt Kennedy Center for Excellence in Developmental Disabilities. 

To access the toolkit, click here:

Margaret Williams Developmental Evaluation Center

Serving young children with developmental disabilities and their families, since 1982.

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Mid State Early Childhood Direction Center

The Mid-State Early Childhood Direction Center (ECDC) provides information, referral and support to families and professionals working with children, both typically developing and those with special education needs, ages birth through five. We work with families to match the needs of their child with available services, including daycare, preschool, integrated special education settings and community agencies. We offer trainings on transition, development, behavior, the special education system and much more. We also provide mentoring at daycares, preschools, UPK, and Head Start programs to promote positive outcomes for young children.  Visit the site at

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New York State Self Determination Coalition

The NYS Self Determination Coalition is an all-volunteer group of parents promoting everyone's right to live a self-determined life.

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Office for People with Developmental Disabilities (OPWDD)

The New York State Office for People With Developmental Disabilities (OPWDD) is responsible for coordinating services for more than 126,000 New Yorkers with developmental disabilities, including intellectual disabilities, cerebral palsy, Down syndrome, autism spectrum disorders, and other disabilities. It provides services directly and through a network of approximately 700 nonprofit service providing agencies, with about 80 percent of services provided by the private nonprofits and 20 percent provided by state-run services.

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Onondaga County Public Library

The Onondaga County Public Library hosts many groups and events throughout the year at their city branches and suburban libraries.  Check out their events calendar to see dates and times for Pokemon groups, Toddler Tango, Anime, Story times (toddler, pre-school, and read & play), Wii events, and Yu-Gi-Oh groups.  This is a great way to have some fun with your kids and to connect with other families.

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OPWDD Front Door FAQs

Visit the following site to get answers to Frequently Asked Questions regarding OPWDD's Front Door.

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OPWDD Front Door Resource Booklet for Accessing Services

Access the booklet by clicking on and then click on "View Fullscreen"

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OPWDD Front Door Training for Individuals and Families

This informational training is designed for individuals and families entering OPWDD’s Front Door.

Course Objectives: The training will offer participants an understanding of OPWDD’s mission and purpose; the process to become eligible for OPWDD supports and services; types of supports and services available; and where individuals and families can go to get assistance.

Target Audience:  Individuals and Families new to OPWDD

Visit this link to register for a training in your area and to access course materials.


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Parent to Parent of NYS is on Facebook

Like us on Facebook to recieve news and events updates through your Facebook account.

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Prior Written Notice: What it is & When It’s Used

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Project Connection After School Program

Project Connection is an after-school program recreational respite program for children with developmental disabilities.  The program runs Monday through Friday from 2pm-4:30pm.  Snack is served each day that children are in the program.  Transportation is NOT provided at this time.  Contact Reshana at PEACE Inc. for more information.  474-3011 or  This program is located at 136 Martin Luther King Street W.; Syracuse.

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Publication: Special Education in Plain Language

This publication provides information for parents and families about laws, regulations, and policies affecting special education programs and services. Our hope is that through the use of this publication, parents, families and school districts will collaborate together in order to help students reach their full potential. Developing this publication has taken the collaborative efforts of many dedicated individuals, organizations and school district personnel. This document is a reflection of the collaboration that is possible when schools and advocates, administrators and families work together to meet our obligation to students with disabilities.

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Rochester Regional Center for Autism Spectrum Disorder

The Rochester Regional Center for Autism Spectrum Disorders (RRCASD) was established in 2007 as 1 of 6 centers in New York State, coordinated by the Center for Autism and Related Disabilities located at SUNY Albany. The RRCASD provides information, education, and technical assistance to community professionals, schools/agencies, caregivers, and individuals with an autism spectrum disorder (ASD) to build region-wide capacity to better meet the needs of individuals with an ASD and improve outcomes. We serve the following counties in Central and Western New York: Broome, Cayuga, Chemung, Cortland, Livingston, Monroe, Onondaga, Ontario, Oswego, Schuyler, Seneca, Steuben, Tioga, Tompkins, Wayne, Wyoming, and Yates.

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SibShop by ARISE

We at ARISE have created a web-based SibShop for siblings that have a brother or sister with a disability. There of course is no fees associated. The forum will be moderated daily by ARISE staff. Participants are welcome to use the boards to share and discuss with other siblings throughout the region on topics of their choice.

ARISE SibShop is for youth that have a sibling with a disability. There will be two groups, one will be for those aged 10-13 and the other for 14-18. The idea is to create a safe place for these youth to share feelings, struggles, accomplishments, or anything else, with other peers that also have a sibling with a disability. ARISE SibShop will be a mix of web-based and in person interactions. Being web based, allows the users to post freely on their time without having to schedule time to attend a group meeting. The forum will be moderated by ARISE for appropriate postings. Participants will also be encouraged to meet as a group regularly at various spots within Central NY. Feel free to share this info with any families you feel may be interested in such a project.

The description of SibShops is adapted from SIBSHOPS: WORKSHOPS FOR SIBLINGS OF CHILDREN WITH SPECIAL NEEDS (Donald J. Meyer & Patricia F. Vadasy, 1994, Baltimore: Paul H. Brookes Publishing Company)."SibShops acknowledge that being the brother or sister of a person with special needs is for some a good thing, others a not-so-good thing, and for many, somewhere in-between. They reflect a belief that brothers and sisters have much to offer one another — if they are given a chance."

Contact Jayson McDowell  or 315-679-0093

SUPAC Trainings

Syracuse University Parent Assistance Center (SUPAC), the Mid-State Special Education Parent Technical Assistance Center, is funded through a contract with the New York State Education Department (NYSED) Office of Special Education and seeks to empower parents of children with disabilities to become meaningfully involved in their children’s education. SUPAC provides parents with resources, trainings, and strategies to enhance their skills and level of confidence to communicate effectively and work collaboratively with schools and other stakeholders.

Please check this site for upcoming trainings and workshops of interest to families.

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The Central New York Chapter of the Autism Society of America

is committed to assisting families affected by autism, reaching out to the community to promote awareness, disseminate information and provide educational and recreational programming. For more information visit their website at

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The Kelberman Center

The Kelberman Center provides state-of-the-art programs and services for children and adults with ASD and their families. Specialized staffing is highly trained to meet the needs of individuals with ASD and includes a pediatric neuropsychologist, psychologists, psychiatrists, social workers and educational and behavior specialists. Our team of professionals addresses the unique needs of both individuals and their families through various programs and services.

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The TRAID Program

Technology Related Assistance for Individuals with Disabilities

TRAID provides service to the following counties: Fulton, Hamilton, Herkimer, Jefferson, Lewis, Montgomery, and Oneida.  TRAID services are available to all people with disabilities living in this region, their families, service providers, employers and educators, as well as those interested in assistive technology.  Services are provided without regard to age, race, religion, gender, or socioeconomic status.  For information on TRAID services in other regions, contact the New York Commission on Quality of Care and Advocacy for Persons with Disabilities at 1-800-624-4143.


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Transition Resources on the Web

Access transition resources addressing self-review information, sample assessments in self determination, career inventories, independent living skills, learning styles, and transition plans using one easy site.


1.) Go to internet

2.) Type in the following

3.) Select "I am a student"

4.) Type in: "transition"

5.) Click on "Transition Resources"



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Upstate Cerebral Palsy

Upstate Cerebral Palsy is the premier provider of direct-care services and programs for individuals who are physically, developmentally, or mentally challenged and their families. Upstate Cerebral Palsy currently employs more than 1,900 full and part-time employees at 74 locations throughout central New York. As direct-care and education centers, these include medical, clinical and therapeutic personnel, teachers, social service staff, maintenance, clerical and general support staff.

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YMCA Y Abilities Programs East Area Y (Fayetteville)

In addition to the wide range of YMCA programs already being offered, the YMCA has created programs designed specifically for children with special needs.Each of these programs will be equipped with the additional support staff needed to ensure your child gets plenty of extra TLC!The following programs will all maintain a minimum ratio of 1:3 (excluding family programs).

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A Family to Family Health Care Information & Education Center.

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