Parent To Parent of NYS


Finger Lakes Resources

2016 Family Support Services Directory

OPWDD Region 1--Finger Lakes DDRO Family Support Services Directory of Agencies & Programs

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Adapted Recreation Services: Events

ARS develops opportunities within the community for all to access, and serves Monroe and surrounding counties, collaborating with other not for profits as well as local businesses. ARS provides Community Connection, Functional Education Skill development, Fitness/Healthy Living classes, Adapted Physical Education Consultation, and Recreational Programs throughout the community. They work closely with self-directed programs to help build classes around the needs of individuals.

Community Connections for individuals who wish to increase their level of independence with daily living skills through guidance and support of qualified ARS staff. First the individual will identify what he/she wants to work on, ARS staff and the individual will establish realistic goals. (Focus areas include, pre-vocational and employment, community engagement, and life skills). ARS staff will create a comprehensive plan for the individual so that he/she can stay on track while working toward goals. Due to the nature of this program, an 8-week session is recommended, meeting on a weekly basis. The duration of each session is dependent upon the individual goals. The cost is $40 per hour.

Functional Education Skills Development: individuals will be assessed based on the area of focus chosen. Following evaluations, levels will be identified and a program will be created for each individual to develop or enhance their skills in each area. The cost for this program is $40 per hour. Areas include:

  • GED Preparation: Preparation course with lessons and practice tests
  • Functional Reading: Enhancing skills to read a bus schedule
  • Functional Math: Enhancing skills to help an individual budget their money or balance their checkbook

Personalized Fitness/Healthy Living: developing a fitness program around an individual's or group's established goals. ARS helps individuals engage within their community through local gyms, parks, and recreational opportunities. Also, ARS will help develop lifestyle goals that focus on fitness, healthy eating, and fun ways to become active. These events are community-based with dates and times to be established with the individual client. The cost for this program is $50 per session.

To register for programs email ARS with a program request, the participant's name, time and day. A confirmation of enrollment will be emailed back followed by a payment request.

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Anaphylaxis Community Experts (ACEs)

Food allergies and anaphylaxis are on the rise, as are peanut-free schools, baseball parks, and airplanes. Anaphylaxis Community Experts (ACES) is a program developed by Allergy & Asthma Network Mothers of
Asthmatics in partnership with the American College of Allergy, Asthma and Immunology.

Through this program, ACE conducts FREE local seminars to increase awareness about anaphylaxis and evidence-based treatment and prevention strategies to a variety of organizations including camps, daycare centers, schools, and Scout leaders.

For more information, please visit the Allergy Advocacy Association's website or contact Janet Goldman, by calling (585) 255-0384 or emailing.

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ARC Livingston-Wyoming Counties

Empowering and supporting people of all ages with intellectual and developmental disabilities to be independent, productive and dignified members of our community

The ARC of Livingston-Wyoming offers a variety of supports and services to assist individuals with developmental and intellectual disabilities reach their full potential.  Check the website to learn about opportunities for all ages, upcoming events and to sign-up for their newsletter.  

The Arc of Livingston-Wyoming is a private, not-for-profit agency. They provide services to developmentally disabled individuals and their families in Upstate New York. Parents founded the agency in 1961, and families continue to be their driving force.

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Brain Injury Association of New York Sate (BIANYS)

The Brain Injury Association of New York State (BIANYS) has many helpful resources. Check out their website for their electronic newsletter, upcoming events, webinars, conferences and additional information.

Family Advocacy Counseling and Training Services Program (FACTS)

If you or a member of your family sustained a brain injury prior to the age of 22 and you live in New York State, a FACTS Coordinator can help you! Funded by the Office for People with Development Disabilities (OPWDD), the FACTS Program is a state-wide support program for families and individuals who sustained a brain injury prior to age 22. FACTS Coordinators are employees of the Brain Injury Association of NYS and are located in each region of the State.

The FACTS coordinator in the Finger Lakes region of Parent to Parent of NYS is:

Sharon Johnson, CBIS

Counties served: Chemung, Livingston, Monroe, Ontario, Orleans, Schuyler, Seneca, Steuben, Wayne & Yates

Contact information:  / (315) 538-8018.

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eiFamilies Website; Part of the Family Initiative Coordination Services Project at the Just Kids

EiFamilies.jpgThe Bureau of Early Intervention and the Family Initiative Coordination Services Project announces a redesigned and updated website for the Family Initiative Coordination Services Project, known as Partners. This website, a part of New York State Department of Health Bureau of Early Intervention sponsored contract with Just Kids Early Childhood Learning Center.

The website redesign includes:

  • New and updated information, resources and supports on a variety of Early Intervention related topics for families
  • A drop box feature which allows a user to view content translated instantly into one of 104 different languages
  • Information on Early Intervention Partners Training for parents
  • Helpful links to State and National programs and organizations
  • Early Intervention Program Frequently Asked Questions and Answers

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In the Driver’s Seat: Support Staff Registry

In the Driver’s Seat is excited to announce a new opportunity in Region 1 to connect families and individuals with developmental disabilities to support staff. Whether you are seeking staff to provide OPWDD funded services such as respite or community habilitation (agency supported and/or self-directed) or are interested in part-
time work providing direct service to someone with a developmental disability, this Registry can assist in providing those connections. This is a free service and is available to anyone seeking staff or interested in providing support, regardless of agency affiliation.

For more information email In the Driver's Seat at or call 585-671-1214, and see the flyer linked below.

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Local TBI Support Groups/Contacts

Brockport - Seymour Library, 161 East Avenue

Meetings are held on the 1st Tuesday night of the month at 7:00 pm and are open to all TBI survivors and family members.

Contact:  Sophia Charles (585) 637-5965 for confirmation of meetings.


Cananaigua - Thompson Hospital Continuing Care Center in the M & M Ewining Care Center in the RG&E Room

Meetings are held on the 2nd Wednesday of the month from 5:00 -6:00 pm.

Contact:  Allison Eaton (585) 507-7002


Happiness House - 5415 County Road 30, Canandaigua, NY. 


Meetings are held on the 2nd Thursday and 4th Tuesday of the month from 3:00 -4:00 pm and are open to people with brain injuries, caregivers, and adult family and friends.

Contact:  Melanie Youman (585) 394-9511 


Newark - 165 East Union Street, 4th floor, room 408

Meetings are held on the 1st and 3rd Wednesday of the month at 7:00 pm.

Contact:  Mary Beth Camp (315) 597-3747


Rochester - Al Sigl Center, 1000 Elmwood Avenue, Door #1

The Frank Peirce Memorial TBI Support Group meets on the 2nd and 4th Wednesday of the month at 7:00 pm and is open to individuals with TBI and their families.

Contact:  Sharon Johnson (315) 516-8162


Onine Concussion Support Group

Group meets one Sunday each month during the school year.  Online live meetings open at 1:30 pm.

Contact:  Steve Hicks at

On The Go Transportation Services

Family Support On The Go is a door-to-door transportation service to assist eligible individuals who live with family in Seneca, Yates, Ontario and Wayne Counties with transportationTuesday through Saturday. Reservations are required a week in advance, and minors must be accompanied by an adult. Car seats and boosters must be provided by the family. For additional information call Emily Jones at 315-651-3280 or 315-856-8136.

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Recreation   RUBIES: Special Needs Cheer

Core Athletix Rubies is in their 2nd season as a special needs cheer team. This team is comprised of athletes ages 5 and above (up to and including adults) of varying abilities. We accept children of all disabilities and levels of functioning.

The team practices 1 time per week for 1 hour sessions running from June-May.

During practices our Rubies work on fine and gross motor skills, self-esteem, team interactions and language skills through activities aimed at developing a comprehensive cheer routine. The team learns the same routine sections as the competitive cheer teams do: jumps, motions, dance, stunts, pyramid and yes, tumbling. The routine is tailored to the abilities of each individual athlete so that all athletes can participate to the full extent of their abilities.

Each athlete is assigned a ‘buddy’ athlete from within our competitive cheer program to help them learn the routine and improve their skills.  Rubies perform their routine at local during the course of the season.  Typical travel includes Buffalo, Rochester and Syracuse.

The Rubies team is coached by a USASF (United States All-star Federation) certified coach along with several junior coaches and a consultant regarding special needs limitations and constraints.

Practices are Sundays from 1-2 p.m. at the Core Athletix facility located at 1344 University Avenue.

The program is free to participants.  Coaches donate their time and expenses are currently covered by generous donations of local businesses and all-star members of Core Athletix.  If you are interested in donating to Rubies, please feel free to contact the Core Athletix office for further information.

On behalf of myself and the Core Athletix staff and community, we welcome athletes to come to a practice at no cost to determine if this program fits their needs. For more information please call the Core Athletix office at 585-244-2496.

Taylor Coffman

585-244- 2496

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The Autism Center’s Camp Puzzle Peace

Family autism center.jpg

The Autism Center's Camp Puzzle Peace offers a variety of programs and camps for children, families, siblings and parents. Programs for children ages 4-12 are designed to support unique learners and follow the lead of the child with their love of music, art, movement, play and technology to continue to work on needed social and communication skills. Programs for teens tap into teen interests and are delivered through the mediums of technology, music or art and target specific social skills. Additionally, Camp Puzzle Peace offers Water Safety and Adaptive Swim programs which are designed to help children be safe around water and find joy in water recreation as they get older.

Some of the programs offered at Camp Puzzle Peace are listed below, check often as programs may change.

Programs for ages 4-12 year-old include:

  • Sensory/Art Exploration
  • Music Social Skills
  • Youth Movement Activities
  • Zones of Regulation

Programs for teens include:

  • Teen Technology
  • Zones of Regulation

Family Events:

  • Holiday Parties
  • Community Outings

Water Safety and Adaptive Swim

Sibling Programs include:

  • Sibling Empowerment Group - Ages 8 to 12

Programs for Parents include:

  • Mom's Night Out
  • Parent Respite Opportunities

Consultations for families who want individualized support including:

  • Academic Tutoring Services
  • Assessment of Academic Skills
  • Social Thinking Skills
  • Behavior Consultation

The fees for programs and services vary, click here to view information about each program as well as fees." target="_blank">Visit the site

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