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Health Care Information & Education Center

Family Voices New York at Parent to Parent of NYS is the Family Voices State Affiliate Organization (SAO) and the Family-to-Family Health Information Center (F2FHIC) in New York.


F2F HICs are uniquely able to help families because they are staffed by family members who have first-hand experience navigating the maze of health care services and programs for CYSHCN. This intimate understanding of the issues that families face make F2F staff exceptionally qualified to help families navigate health systems and make informed decisions.

The Family-to-Family Health Information Center in New York State is a family-staffed organization that assists families of children and youth with special health care needs (CYSHCN) and the professionals who serve them. F2F HICs provide support, information, resources, and training around health issues. All F2F HICs have a strong commitment to and expertise about CYSHCN. 

Our Family to Family HIC provides:

  • Assistance to families and professionals in navigating health care systems;
  • Information, education, training, support and referral services;
  • Outreach to underserved / underrepresented populations;
  • Guidance on health programs and policy;
  • Collaboration with other F2F HICs, family groups, and professionals in efforts to improve services for CYSHCN; 

Typical questions that a parent or professional might ask an F2F HIC are:

  • Is there a health insurance program that will pay for my child’s medical needs?
  • Medicaid has denied payment of some of my child’s services. What do I do now?
  • My child is very medically complicated. How can I best work with her doctors?
  • Where can I find a support group for families of children with my child’s disability?

For further information about F2F HIC services, please contact Lin Perry, Project Manager at lperry@ptopnys.org .

 

Explore news, events or categories on the sidebar or use the search box to search within our Family to Family Health Information Center part of our website.  You may also want to visit our Library.




Statewide News

New York State Population Needs Assessment
YOUTH POWER is seeking youth between the ages of 14-24
Regional Coordinator Position in Hudson Valley Office
Family Initiative Coordination Services Project - Partners - redesigned website
Redesigned website for the Family Iniative Coordination Services Project

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Statewide Events

What You Need to Know About Assistive Technology in the IEP
Webinar: Education Records Organizer
Webinar: Medicaid Service Coordination for Families – Getting the Most from Your Child’s Program
Webinar: Preventing Parent Burnout for Parents of Children with Special Needs
WEBINAR- What You Need to Know About Assistive Technology in the IEP
Webinar: Loss, Grief, and Adjustment for Parents of Children with Special Needs
Webinar: A Guide for Families to Understanding Supports & Services Administered by OPWDD
Understanding the Regulation of the Commissioner of Education Part 200 Students with Disabilities
Understanding the Regulation of the Commissioner of Education Part 200 Students with Disabilities
Family Retreat: Autism Support Weekend

See all Statewide Events