Taking responsibility and being able to advocate for one’s own health care will be different for each person. However, for everyone, self-direction and autonomy are desired outcomes. For parents who have cared for a child and advocated for their child’s health care, it is a shift to be guiding a teen or young adult as they move through adolescence towards more independence.
Crucial to this is respecting and supporting an individual’s responsibility for their own health care and their participation in decision-making. With funding from New York State’s Family to Family Health Care Information and Education Center, the information included in this publication was developed to assist families and youth with special health care needs and disabilities.