Parent To Parent of NYS


Health Care Resources

Links Digest

146 Links Digest January 2017

This month's issue contains the Lucille Packard Foundation's powerful photographic essay capturing the experience of families raising children with special health care needs. They are accepting additional entries, so tell your story! Additional information includes tips on how to prepare for well child visits, a chart that explains the difference between a school's identification or classification of a child and a clinical diagnosis, a resource guide for families who are concerned about their child's hearing, and strategies for providing sexuality education to children and youth with disabilities.

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Links Digest #145 December 2016

Open Enrollment for insurance coverage through the Affordable Care Act is still available through January 31st, however the plans will not have a January 1st effective date. If you are already enrolled, January 31st is the deadline to make any changes to 2017 plans. Also featured this month is information on creating family health history documents, Supplemental Security Income (SSI), Autism screening services, transitioning into adulthood and more.

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144 Links Digest November 2016

Open enrollment for the Affordable Care Act is underway. For coverage to be effective as of January 1st, enrollment must be completed by December 15th. Learn more about applying for coverage through NY State of Health, care mapping, and an opportunity to provide the Centers for Medicare and Medicaid Services feedback on how to expand community-based services in this month's edition of the Links Digest.

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Links Digest #143 October 2016

Open enrollment for plans available through the Affordable Care Act begins November 1st.  Learn more about selecting a plan, and the deadlines for doing so, in this month's Links Digest.  Also featured are some great resources for assisting children with disabilities who are experiencing bullying and a comprehensive guide to air travel when your child has special health care needs.

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Links Digest #142 September 2016

This month's edition of Links Digest includes information on new HIPAA guidance from the Department of Health and Human Services, an archived webinar on strategies to use when appealing an insurance denial, information on developmental screenings, and a check-list for transition from pediatric to adult service systems.  We welcome your feedback to

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Links Digest #141 Summer 2016

This combined issue of Links Digest offers many useful back-to-school resources, including information on speech and language development, vision and hearing screenings, and dental health.  Did you know that students with learning disabilities are at higher risk of developing clinical depression?  Check out the article and know the signs.  Also included are many helpful links to improve communication with professionals and assist in financing care.

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Links Digest #140 June 2016

We are pleased to announce the return of our monthly Links Digest publication.  Links Digest features web-based resources on supporting families as partners in decision-making, accessing early and continuous screening services, partnering with professionals within a medical home, ensuring adequate insurance coverage, building effective community services that are easy to use, and planning for the transition to adult life.

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