Parent To Parent of NYS

Home

Health Care Resources

Links Digest

146 Links Digest January 2017

This month's issue contains the Lucille Packard Foundation's powerful photographic essay capturing the experience of families raising children with special health care needs. They are accepting additional entries, so tell your story! Additional information includes tips on how to prepare for well child visits, a chart that explains the difference between a school's identification or classification of a child and a clinical diagnosis, a resource guide for families who are concerned about their child's hearing, and strategies for providing sexuality education to children and youth with disabilities.


Download PDF



Links Digest #145 December 2016

Open Enrollment for insurance coverage through the Affordable Care Act is still available through January 31st, however the plans will not have a January 1st effective date. If you are already enrolled, January 31st is the deadline to make any changes to 2017 plans. Also featured this month is information on creating family health history documents, Supplemental Security Income (SSI), Autism screening services, transitioning into adulthood and more.


Download PDF



144 Links Digest November 2016

Open enrollment for the Affordable Care Act is underway. For coverage to be effective as of January 1st, enrollment must be completed by December 15th. Learn more about applying for coverage through NY State of Health, care mapping, and an opportunity to provide the Centers for Medicare and Medicaid Services feedback on how to expand community-based services in this month's edition of the Links Digest.


Download PDF



Links Digest #143 October 2016

Open enrollment for plans available through the Affordable Care Act begins November 1st.  Learn more about selecting a plan, and the deadlines for doing so, in this month's Links Digest.  Also featured are some great resources for assisting children with disabilities who are experiencing bullying and a comprehensive guide to air travel when your child has special health care needs.


Download PDF



Links Digest #142 September 2016

This month's edition of Links Digest includes information on new HIPAA guidance from the Department of Health and Human Services, an archived webinar on strategies to use when appealing an insurance denial, information on developmental screenings, and a check-list for transition from pediatric to adult service systems.  We welcome your feedback to lperry@ptopnys.org.


Download PDF



Links Digest #141 Summer 2016

This combined issue of Links Digest offers many useful back-to-school resources, including information on speech and language development, vision and hearing screenings, and dental health.  Did you know that students with learning disabilities are at higher risk of developing clinical depression?  Check out the article and know the signs.  Also included are many helpful links to improve communication with professionals and assist in financing care.


Download PDF



Links Digest #140 June 2016

We are pleased to announce the return of our monthly Links Digest publication.  Links Digest features web-based resources on supporting families as partners in decision-making, accessing early and continuous screening services, partnering with professionals within a medical home, ensuring adequate insurance coverage, building effective community services that are easy to use, and planning for the transition to adult life.


Download PDF



Links Digest #139 January 2014

This double edition of Links Digest includes information about the recent regulations published to define "home and community-based" in the provision of waiver services, news about the North Country Health Systems Redesign Commission, and resources to learn about the benefits of palliative care.  Recent legislation that extends insurance coverage for orally administered formulas for those with eosinophilic esophagitis is also referenced.  A Frequently Asked Questions list regarding use of individual NY State of Health marketplace insurance plans is featured.







Download PDF



Links Digest #137 October 2013

This month's Links Digest includes an issue brief on self-directed services within a managed care model and news of an insurer dropping participation in Medicaid managed care plans.  It also contains information about implementation of the Affordable Care Act in NYS, notification that youth who have aged out of foster care may be eligible for Medicaid coverage until age 26 regardless of income, and a link to The Advocacy Atlas, a new resource tool for families.


Download PDF



Links Digest #136 September 2013

The September Links Digest starts a series on accessing health insurance through the New York State of Health Marketplace.  Additionally, it includes an update on the Fully Integrated Duals Advantage demonstration (care coordination for those with both Medicare and Medicaid), information on the federal regulations pertaining to transportation by school districts, and a report on low flu vaccination rates for children with either intellectual disability or epilepsy, two high risk categories for flu complications. 


Download PDF



Links Digest #135 August 2013

The importance of assessing and providing for the needs of family caregivers is highlighted in this month's Links Digest, along with news regarding a crisis in Early Intervention, insurance coverage for ABA (applied behavior analysis), and the latest on implementation of the Affordable Care Act in NYS.


Download PDF



Links Digest #134 July 2013

The July edition of Links Digest contains information about the approved 2014 rates for health insurance plans that will be carried on the Health Benefit Exchange, OPWDD's plans for transforming employment opportunities for individuals with disabilities, and a study on compliance by specialty physicians with ADHD treatment guidelines.


Download PDF



Links Digets #133 June 2013

The June edition of the Links Digest includes information about the agreement between NYS and Centers for Medicare and Medicaid Services to transform the OPWDD service system.  Additionally, recognize some great Dads and cast your vote in the Family Voices' Father's Day contest.


Download PDF



Links Digest #132 May 2013

Learn more about New York's Health Benefit Exchange, the insurance marketplace created by the Affordable Care Act, in the May edition of the Links Digest.  The Health Benefit Exchange will begin enrollment in October for coverage effective January 1, 2014.


Download PDF



Links Digest #131 April 2013

The April 2013 Links Digest highlights a NYSARC blog post discussing the framework for OPWDD's managed care system as developed during the 2013-2014 budget process.  This edition also includes a parent's account of how she learned to partner with geneticists, an interesting journal article regarding the connection between health homes and parental coping, and a list of key questions those considering college should ask of the Disability Services Office on campus.


Download PDF



Links Digest #130 March 2013

The March 2013 issue of Links Digest includes information on the opportunity for public comment on proposed regulations for the Justice Center, a presentation by the Medicaid Redesign Team on the Governor's 30-day budget amendments, and news regarding a new HIPAA rule which will expand patient privacy protections and allow access to medical records in electronic format.


Download PDF



Links Digest #129 February 2013

The February edition of Links Digest contains information about the Governor's 30-day budget amendments which are due February 22nd, an update on providing input to the Olmstead Plan Development and Implementation Cabinet, and clarification on the use of Family and Medical Leave for children 18 years of age or older.  It also includes information on changes to the parental consent requirements school districts must comply with in order to access Medicaid reimbursement and Rare Disease Day events taking place in NYS on February 28th.


Download PDF



Links Digest #128 January 2013

The January edition of Links Digest includes information on Governor Cuomo's 2013-2014 State Budget, archived webinars on Emergency Preparedness and Newborn Screening, and updates on coverage for orthopedic footwear, compression stockings, and ABA services.
 


Download PDF



Links Digest #127 December 2012

Download PDF



Links Digest #126 November 2012

Download PDF



Links Digest #125 October 2012

Download PDF



Links Digest #124 September 2012

Download PDF



Links Digest #123 August 2012

Download PDF



Links Digest #122 July 2012

Download PDF



Links Digest #121 June 2012

Download PDF



Links Digest #120 May 2012

Download PDF



Links Digest #119 April 2012

Download PDF



Links Digest #118 March 2012

Download PDF



Links Digest #117 February 2012

Download PDF



Links Digest #116 January 2012

Download PDF