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Disability Resources - U.S. Dept. of Labor Office of Disability Employment Policy

Looking for resources for yourself or another family raising a child (or children) with a special health care need? The disability.gov website contains a number of local, state and federal resources for families of with children with special health care needs.


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Early Intervention Steps: A Parent’s Basic Guide to the Early Intervention Process

The New York State Early Intervention Program (EIP), part of the nationwide EIP, is a program for infants and toddlers under three years of age who have developmental delays, either from a disability or an unknown cause. To find out more about EIP services, check out the New York State Department of Health’s booklet entitled “Early Intervention Steps: A Parent’s Basic Guide to the Early Intervention Process”:


In English:  https://www.health.ny.gov/publications/0532.pdf

In Spanish: http://www.health.ny.gov/publications/0533.pdf




Addressing Consumer Priorities in Value-Based Care

"Addressing Consumer Priorities in Value-Based Care” is a publication outlining how consumers and consumer advocates can be included in health care system redesign in a meaningful way. The document presents a strategy to get those most affected by the redesign to take an active role in the process.


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Transition to Adulthood:  A Health Care Guide for Youth and Families

Although approaching adulthood is an exciting time in any young person’s life, it is also a time of uncertainty. Like all youth approaching adulthood, individuals with special health care needs and their families need to plan for the future. This check-list thoroughly explains the many aspects to be considered when transitioning from adolescence to adulthood including worksheets for teaching one how to manage their healthcare.


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