Publications of Parent to Parent of New York State<< Back to Library Page
Booklet of information and tips for parents, by Parent to Parent of NYS.
The fact sheets included in this booklet were compiled by Parent to Parent of NYS to assist people in NYS locate information needed when navigating service systems. They are a resource for people learning about access to health care and services. Topical sheets are: Medicaid, Home and Community Based Waivers in NYS, Financial Aid for SpecialHealth Care Needs, Doctor Selection and Section 504.
This booklet of tips sheets is available here in PDF or by contacting your Regional Office.
Compiled by reaching out to families and learning from them, this is a booklet of tip sheets for parents and other caregivers on topics that all families think about: Stress Reduction Tips , Coping with Your Child’s Health Care Needs, Medical Prescription Tips ,Tips on Handling Medical Appointments, Record Keeping, Researching Health Care Information on the Internet, Disability and Emotions and When Your Child is Diagnosed with a Disability - What Next?
Self Determination/CSS in New York has created a means of developing the potential for individualized, self-directed services. It offers the opportunity to design services based on an individual’s desires and needs as identified in a Person Centered Plan. It is a mechanism developed by NYS OPWDD (Office for People with Developmental Disabilities).
To read more, download the PDF.
Parent to Parent of NYS designed this poster to promote prevention of Fetal Alcohol Spectrum Disorders and Shaken Baby Syndrome.
Parent to Parent of NYS, with funding as NYS’ Family to Family Health Care Information Center, has developed a two page awareness sheet about Disability Awareness in the workplace.
The messages that leaders and co-workers convey play an important role in how everyone reacts. The fast pace of today’s society, including the media and social networking, bombards everyone with multiple messages. All employers and employees have the potential to model pro-active disability awareness messages for other employees and each other.
Guide to Understanding Supports and Services Administered through NYS Office of Mental Retardation and Developmental Disabilities
Developed by Parent to Parent of NYS to inform families about the wide range of services available to qualified individuals and to assist them in accessing those services for their loved one with a developmental disability.
A Health Care Notebook is an organizational tool for families who have children with special health care needs.
Using a Health Care Notebook can help you keep track of important information about your child’s health, providers and health history. In caring for your child with special health care needs you will receive information from many sources. This Health Care Notebook will help you organize information in one central place. It will help you track changes in medication/treatments and have a place where you can look up previously used health care professionals (i.e. speech therapist from Pre-K, first ENT, etc.). It will be a place to keep phone numbers, doctors, locations of testing, vendors of durable medical equipment, serial numbers, etc., authorizations/approvals in one place rather than in envelopes and boxes under beds.
Download a complete Health Care Notebook below or contact your Regional Office to request a hard copy.
Parent to Parent of New York State designed this bookmark to raise awareness about how the language used to describe people with disabilities shapes the attitudes of those around us.
Understanding Family Support Services is a family friendly explanation of services and supports available in New York State for individuals with intellectual and developmental disabilities and their families. Family Support Services may include respite, recreation, social opportunities, etc. for those who care at home for their child with special needs.