Parent To Parent of NYS

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Our Mission

Parent to Parent of New York State builds a supportive network of families to reduce isolation and empower those who care for people with developmental disabilities or special healthcare needs to navigate and influence service systems and make informed decisions. 



Headlines and Highlights

Regional Coordinator Position in Hudson Valley Office

We are seeking a part-time Regional Coordinator in our Hudson Valley office, located at Westchester Institute for Human Development.  Additional information available through the link below.

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YOUTH POWER is seeking youth between the ages of 14-24

YOUTH POWER! is seeking youth to be members of a peer-run statewide planning group for AMPLIFY-NY! Youth and young adults with developmental and other disabilities ages 14-24 are invited to join this group to help design and plan regional youth leadership forums across the state, beginning with the pilot forum in the Capital District. Young people who are interested in joining this group can apply by clicking here.

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New York State Population Needs Assessment

In 2015 the Office of People with Developmental Disabilities Balancing Incentive Program provided St. Mary's Healthcare System for Children a grant to assess the need for services for the aging out medically fragile population in New York State, and to develop a pilot group home model for young adults with medical fragility. Young adults with complex care and medical fragility frequently face challenges finding care settings prepared to meet their unique needs. With limited skilled nursing facilities that serve their age demographic and a few group homes capable of meeting their complex clinical needs these young adults are often relegated to social isolation in institutional settings intended for the elderly or left to be cared for by their aging parents struggling with inadequate support.

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Recommended





How Learning Disabilities Make Children Vulnerable to Depression

While nearly everyone experiences feelings of sadness and periods of "the blues," people with learning disabilities have a greater risk of developing clinical depression than the general population. In fact, the stress of coping with a learning disability may lead to more frustration that can give rise to episodes of depression. This link provides signs of depression that can be discussed with a child’s physician or mental health counselor


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Transition Tool Kit

All individuals, regardless of the level of support needed, should have the ability to live a life filled with purpose, dignity, choices and happiness. This downloadable tool kit provides users with suggestions and options to consider on their own unique path to adulthood. While written for caregivers of children with Autism, this link is helpful to anyone transitioning from pediatric to adult healthcare and the support individuals that are assisting them on this journey.


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Back-to-School Introduction Letters

Back to school is a stressful time for both children with special health care needs and their parents. Click on this link to download letters that students can use to give teachers information about the student’s disability or special health care need and how it affects their classroom experience.


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SEFA

State Employees' Federal Appeal

Please consider donating to Parent to Parent of NYS during this year's State Employees' Federal Appeal Campaign.



A Family to Family Health Care Information & Education Center.

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A Message From Our Director




Added / Updated

Got Transition

Transition is the process of moving from pediatric to adult healthcare. This will mean different things to different patients. Some switch from a pediatric provider to an adult provider, while others take an adult approach to healthcare while staying with the same provider. 


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Vision and Hearing Screening Services for Children and Adolescents in the Medicaid Benefit

Offers improved guidelines regarding EPSDT (Early Periodic Screening Diagnostic and Treatment) in the field of vision and hearing screenings. These screenings should occur at each well-child check-up and if an issue is suspected, further follow-up and treatment should be conducted.


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Oral Health and Learning:  When Children’s Oral Health Suffers, So Does Their Ability to Learn

Dental Health is an important piece of a child’s overall health that is often overlooked, particularly if a child has other health issues or is reluctant to visit a dentist. To learn why Dental Health is so important, please check out this 4-page fact sheet from the National Maternal and Child Oral Health Resource Center.


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