Parent To Parent of NYS

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Our Mission

Parent to Parent of New York State builds a supportive network of families to reduce isolation and empower those who care for people with developmental disabilities or special healthcare needs to navigate and influence service systems and make informed decisions. 

Headlines and Highlights

I/DD Identification Cards Now Available

A new state law allows identification cards to help assist with emergency responders are now available to individuals with ID/DD needs through OPWDD. The cards are meant to be a means of sharing needs with first responders and others when communication may be an issue. Please note that these are not picture ID cards but could prove to be a valuable aid for our loved ones who require assistance when interacting with others, particularly with emergency personnel who may not understand their needs.  To obtain a card, complete the NYS OPWDD I/DD Identification Card Request Form

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OPWDD People First Care Coordination

The Office for People With Developmental Disabilities is making an important improvement to the way services are coordinated for people with intellectual and developmental disabilities in New York State, known as People First Care Coordination. Under this new model, the Medicaid Service Coordination (MSC) program which is currently used to help people plan their services will be replaced by a new and improved program called Health Home Care Management.


People First Care Coordination

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Family Support Services Advisory Councils Info Letter (NYS OPWDD, 2018)

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Family Support Services Advisory Councils Booklet (NYS OPWDD, 2018)

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Bridges to Health

The Bridges to Health (B2H) Home and Community-based Medicaid services waiver program is designed to provide children in foster care who have significant mental health or developmental disabilities, or health care needs, with services to help them live in a home or community-based setting.

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State Employees' Federal Appeal

Please consider donating to Parent to Parent of NYS during this year's State Employees' Federal Appeal Campaign.

A Family to Family Health Care Information & Education Center.

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A Message From Our Director

Added / Updated

152 Links Digest March 2019

Transition can be a time of great uncertainty. This month we provide some links to help navigate some big changes that your family may be facing. 

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151 Links Digest February 2019

Families of children with disabilities and/or special health care needs often have added expenses related to the care of their children. Here are some ways to help ease the financial burdens that families face.

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Mariela Adams