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Connecting and supporting families of individuals with special needs

A Family to Family Health Care Information & Education Center

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Long Island Office

Serving Nassau and Suffolk Counties

Welcome to the Long Island Office of Parent to Parent of NYS -- a place where families of individuals with special needs, and the professionals who support them, can meet and share information.   

Parent to Parent of NYS believes in the power of parents helping each other.  It is our hope that the information we share here will flow both ways.  If you belong to a group or association that has information of local interest to families in our community, please let us know and we will pass on the word.  Our goal is to provide you with connections, tools and resources to support you in advocating for a person with disabilities or special health care needs.

Parent to Parent Program

Medicaid Service Coordination Training for Families

Health Care Information Center

Parent to Parent Program: Are you facing the challenges of parenting a child with a disability or special health care needs?   So many questions....are there other children who have disability similar to my child’s?  What will this mean for my family? What about the future?

Parent to Parent of New York State connects parents who live in New York State with a trained volunteer support parent whose child has the same disability, illness, issue or concern to provide support and share information. We can also connect families with local, state or national resources and organizations. You always get a parent who has "been there" on the phone when you call us!

Join our ever expanding network of parent support.   It is isolating when you feel you are the only one experiencing a situation or you just don't know where to turn for help. We can help reduce your feelings of isolation. 

Call 1-800-559-1729 or 631-434-6196 and speak with GinaMarie Dowling or Valerie Stammelman, Regional Coordinators.

Need to learn about Medicaid Service Coordination or accessing services for a person with developmental disabilities administered by NYS OMRDD?  Medicaid Service Coordination (MSC) is a Medicaid State Plan service administered by the NYS Office of Mental Retardation and Developmental Disabilities (OMRDD).  MSC assists people with developmental disabilities in gaining access to necessary services and supports to lead successful lives in the community according to their own needs and desires.  Visit our Medicaid Service Coordination page to learn more and view a schedule of trainings for family members.  Questions about MSC or OMR services:  Contact Mary Beth Fadelici at (800)405-8818 or email mbdesk@verizon.net

Health Care Information Center: The Family to Family Health Care Information and Education Center assists families of children with special health care needs in making good health care decisions and accessing health care.  Staff are available to assist in health care advocacy as well as using a Health Care Notebook, an organizational tool to help parents keep track of their child's medical needs. For more information, contact Annette Riai at 800-305-8814 or email f2fstatenisland@verizon.net

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This page last updated on June 4, 2010

Copyright 2008 Parent to Parent of New York State. All Rights Reserved.

Parent to Parent of NYS - Statewide Office
500 Balltown Rd.
Schenectady, NY 12304

518-381-4350 or 1-800-305-8817

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