Parent To Parent of NYS

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Our Mission

Parent to Parent of New York State builds a supportive network of families to reduce isolation and empower those who care for people with developmental disabilities or special healthcare needs to navigate and influence service systems and make informed decisions. 



Headlines and Highlights

Redesigned website for the Family Iniative Coordination Services Project

The Bureau of Early Intervention and the Family Initiative Coordination Services Project announces a redesigned and update website for the Family Initiative Coordination Services Project, known as Partners. This website, a part of New York State Department of Health Bureau of Early Intervention sponsored contract with Just Kids Early Childhood Learning Center.

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New York State Population Needs Assessment

In 2015 the Office of People with Developmental Disabilities Balancing Incentive Program provided St. Mary's Healthcare System for Children a grant to assess the need for services for the aging out medically fragile population in New York State, and to develop a pilot group home model for young adults with medical fragility. Young adults with complex care and medical fragility frequently face challenges finding care settings prepared to meet their unique needs. With limited skilled nursing facilities that serve their age demographic and a few group homes capable of meeting their complex clinical needs these young adults are often relegated to social isolation in institutional settings intended for the elderly or left to be cared for by their aging parents struggling with inadequate support.

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Recommended

Summer Camps in New York State for Children with Special Needs

Are you planning ahead for summer and thinking about a summer camp experience for your child with special needs?  You might be interested in some resources we have gathered - check them out here.


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Access Pass -  NYS Parks, Recreation and Historic Preservation

The Access Pass permits residents of New York State with disabilities, as defined in the application, free or discounted use of state parks, historic sites, and recreational facilities operated by the New York State Office of Parks, Recreation and Historic Preservation and the New York State Department of Environmental Conservation. The pass holder may have free or discounted use of facilities operated by these offices, for which there is normally a charge.


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Bridges to Health

The Bridges to Health (B2H) Home and Community-based Medicaid services waiver program is designed to provide children in foster care who have significant mental health or developmental disabilities, or health care needs, with services to help them live in a home or community-based setting.


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SEFA

State Employees' Federal Appeal

Please consider donating to Parent to Parent of NYS during this year's State Employees' Federal Appeal Campaign.



A Family to Family Health Care Information & Education Center.

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A Message From Our Director




Added / Updated

Yellow Dot Program

Yellow Dot is a free public safety program of the New York State Sheriff's Association designed to help first responders provide life-saving medical attention during that first “golden hour” after a crash or other emergency. A Yellow Dot in the driver’s-side rear window of your vehicle will alert first responders that vital medical information is stored in the glove compartment.


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Family Support Services Advisory Councils Info Letter (NYS OPWDD, 2018)

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Family Support Services Advisory Councils Booklet (NYS OPWDD, 2018)

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Mariela Adams
​Kaitlin Stack-Whitney