Parent To Parent of NYS

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Our Mission

Parent to Parent of New York State builds a supportive network of families to reduce isolation and empower those who care for people with developmental disabilities or special healthcare needs to navigate and influence service systems and make informed decisions. 



Headlines and Highlights

NYMAC Conducts PKU Survey

New York – Mid-Atlantic Consortium for Genetic and Newborn Screening Services (NYMAC) invites anyone with PKU or the parent/guardian of a child with PKU to participate in a survey about formula and medical foods for treat of phenylketonuria (PKU). The results of this 20 minute survey will give information to policy makers about the needs of people with PKU. It will also provide information that will be used to help other parents and people with PKU. Please take the survey online at  https://surveymonkey.com/r/NYMACPKU

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Tina Beauparlant Receives Liberty Bell Award May 2, 2016

Parent to Parent of NYS is pleased to announce that Special Education Advocate, Tina Beauparlant will be the recipient of the Schenectady County Bar Association's Liberty Bell Award for 2016. The presentation of the Liberty Bell Award will be made as part of the Law Day celebrations taking place this Monday, May 2, 2016 at the Schenectady County Community College in the Van Curler Room.

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Parent to Parent tops Care.com’s list of 10 Helpful Special Needs Organizations

"These notable organizations and websites help kids with special needs."   Click here to read their article.

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Links Digest #140 June 2016

We are pleased to announce the return of our monthly Links Digest publication.  Links Digest features web-based resources on supporting families as partners in decision-making, accessing early and continuous screening services, partnering with professionals within a medical home, ensuring adequate insurance coverage, building effective community services that are easy to use, and planning for the transition to adult life.

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Recommended

ABLE Accounts

ABLE Accounts are tax-advantaged savings accounts for individuals with disabilities and their families,  2016 marks the first year in which ABLE accounts will be available to qualified beneficiaries.    Here are two resources we recommend:   ABLE Accounts: 10 Things You Should Know and Becoming ABLE Ready.


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Parent to Parent of NYS Brochure

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Respectful Language Bookmark

Parent to Parent of New York State designed this bookmark to raise awareness about how the language used to describe people with disabilities shapes the attitudes of those around us.


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Guide to Understanding NYS OPWDD Supports & Services

Developed by Parent to Parent of NYS to inform families about the wide range of services available to qualified individuals and to assist them in accessing those services for their loved one with a developmental disability.


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SEFA

State Employees' Federal Appeal

Please consider donating to Parent to Parent of NYS during this year's State Employees' Federal Appeal Campaign.



A Family to Family Health Care Information & Education Center.

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A Message From Our Director