Parent To Parent of NYS

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Our Mission

Parent to Parent of New York State builds a supportive network of families to reduce isolation and empower those who care for people with developmental disabilities or special healthcare needs to navigate and influence service systems and make informed decisions. 

Headlines and Highlights

Links Digest #142 September 2016

This month's edition of Links Digest includes information on new HIPAA guidance from the Department of Health and Human Services, an archived webinar on strategies to use when appealing an insurance denial, information on developmental screenings, and a check-list for transition from pediatric to adult service systems.  We welcome your feedback to

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Links Digest #141 Summer 2016

This combined issue of Links Digest offers many useful back-to-school resources, including information on speech and language development, vision and hearing screenings, and dental health.  Did you know that students with learning disabilities are at higher risk of developing clinical depression?  Check out the article and know the signs.  Also included are many helpful links to improve communication with professionals and assist in financing care.

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ABLE Accounts

ABLE Accounts are tax-advantaged savings accounts for individuals with disabilities and their families,  2016 marks the first year in which ABLE accounts will be available to qualified beneficiaries.    Here are two resources we recommend:   ABLE Accounts: 10 Things You Should Know and Becoming ABLE Ready.

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Parent to Parent of NYS Brochure

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Respectful Language Bookmark

Parent to Parent of New York State designed this bookmark to raise awareness about how the language used to describe people with disabilities shapes the attitudes of those around us.

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Guide to Understanding NYS OPWDD Supports & Services

Developed by Parent to Parent of NYS to inform families about the wide range of services available to qualified individuals and to assist them in accessing those services for their loved one with a developmental disability.

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State Employees' Federal Appeal

Please consider donating to Parent to Parent of NYS during this year's State Employees' Federal Appeal Campaign.

A Family to Family Health Care Information & Education Center.

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A Message From Our Director