Parent To Parent of NYS

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Our Mission

Parent to Parent of New York State builds a supportive network of families to reduce isolation and empower those who care for people with developmental disabilities or special healthcare needs to navigate and influence service systems and make informed decisions. 

Michele Juda, Executive Director of Parent to Parent on NYS, joined Phil Bayly, anchor of News Channel 13 (WNYT) and host of Forum 13, on June 25, 2017, for a  discussion about Parent to Parent of NYS' Parent Matching program.

Headlines and Highlights

Conference Scholarships available for Foster Care and Adoption Conference

Scholarships are available to individuals interested in attending Adoptive and Foster Family Coalition of New York's annual Foster Care and Adoption Conference to be held on Thursday, May 10 through Saturday, May 12 at the Hilton Albany. There will be scholarships available to individuals in each distinct types of support: Parents and Relative Caregivers, and Child Welfare Professionals. Scholarships are competitive, and information submitted is used to determine who will receive the scholarship. To apply for these scholarships click here to complete the scholarship application on All applications are due on Saturday, Mar. 31.

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Redesigned website for the Family Iniative Coordination Services Project

The Bureau of Early Intervention and the Family Initiative Coordination Services Project announces a redesigned and update website for the Family Initiative Coordination Services Project, known as Partners. This website, a part of New York State Department of Health Bureau of Early Intervention sponsored contract with Just Kids Early Childhood Learning Center.

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New York State Population Needs Assessment

In 2015 the Office of People with Developmental Disabilities Balancing Incentive Program provided St. Mary's Healthcare System for Children a grant to assess the need for services for the aging out medically fragile population in New York State, and to develop a pilot group home model for young adults with medical fragility. Young adults with complex care and medical fragility frequently face challenges finding care settings prepared to meet their unique needs. With limited skilled nursing facilities that serve their age demographic and a few group homes capable of meeting their complex clinical needs these young adults are often relegated to social isolation in institutional settings intended for the elderly or left to be cared for by their aging parents struggling with inadequate support.

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Summer Camps in New York State for Children with Special Needs

Are you planning ahead for summer and thinking about a summer camp experience for your child with special needs?  You might be interested in some resources we have gathered - check them out here.

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Access Pass -  NYS Parks, Recreation and Historic Preservation

The Access Pass permits residents of New York State with disabilities, as defined in the application, free or discounted use of state parks, historic sites, and recreational facilities operated by the New York State Office of Parks, Recreation and Historic Preservation and the New York State Department of Environmental Conservation. The pass holder may have free or discounted use of facilities operated by these offices, for which there is normally a charge.

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Coding and Reimbursement Tip Sheet for Transition from Pediatric to Adult Health Care

Improving transition from pediatric to adult health care is a national priority, a medical home certification standard, and a meaningful use requirement for electronic health records. Health care transition encompasses increasing youth’s ability to manage their own health and effectively use health services. It also involves ensuring an organized clinical process to prepare youth and families for adult-centered care, transferring youth to a new adult provider, and orienting and engaging young adults in their own care. This link provides CPT (Current Procedural Terminology) billing codes that can be used for time spent with patients who are transitioning from pediatric to adult healthcare.

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Bridges to Health

The Bridges to Health (B2H) Home and Community-based Medicaid services waiver program is designed to provide children in foster care who have significant mental health or developmental disabilities, or health care needs, with services to help them live in a home or community-based setting.

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State Employees' Federal Appeal

Please consider donating to Parent to Parent of NYS during this year's State Employees' Federal Appeal Campaign.

A Family to Family Health Care Information & Education Center.

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A Message From Our Director

Added / Updated

Disability Resources - U.S. Dept. of Labor Office of Disability Employment Policy

Looking for resources for yourself or another family raising a child (or children) with a special health care need? The website contains a number of local, state and federal resources for families of with children with special health care needs.

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Early Intervention Steps: A Parent’s Basic Guide to the Early Intervention Process

The New York State Early Intervention Program (EIP), part of the nationwide EIP, is a program for infants and toddlers under three years of age who have developmental delays, either from a disability or an unknown cause. To find out more about EIP services, check out the New York State Department of Health’s booklet entitled “Early Intervention Steps: A Parent’s Basic Guide to the Early Intervention Process”:

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Addressing Consumer Priorities in Value-Based Care

"Addressing Consumer Priorities in Value-Based Care” is a publication outlining how consumers and consumer advocates can be included in health care system redesign in a meaningful way. The document presents a strategy to get those most affected by the redesign to take an active role in the process.

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Transition to Adulthood:  A Health Care Guide for Youth and Families

Although approaching adulthood is an exciting time in any young person’s life, it is also a time of uncertainty. Like all youth approaching adulthood, individuals with special health care needs and their families need to plan for the future. This check-list thoroughly explains the many aspects to be considered when transitioning from adolescence to adulthood including worksheets for teaching one how to manage their healthcare.

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