Parent To Parent of NYS

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Our Mission

Parent to Parent of New York State builds a supportive network of families to reduce isolation and empower those who care for people with developmental disabilities or special healthcare needs to navigate and influence service systems and make informed decisions. 



Headlines and Highlights

Text4Caregivers survey

Text4Caregivers, a new project from Parent to Parent of NYS with funding from the Developmental Disabilities Planning Council, will provide supportive and informative messaging to family caregivers. We would be very appreciative if you could take a few minutes to share your thoughts with us as we begin to design this service. The survey, which can be found at this link, will remain open through Monday, November 26th: https://www.surveymonkey.com/r/ZGCNC5G

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Redesigned website for the Family Iniative Coordination Services Project

The Bureau of Early Intervention and the Family Initiative Coordination Services Project announces a redesigned and update website for the Family Initiative Coordination Services Project, known as Partners. This website, a part of New York State Department of Health Bureau of Early Intervention sponsored contract with Just Kids Early Childhood Learning Center.

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New York State Population Needs Assessment

In 2015 the Office of People with Developmental Disabilities Balancing Incentive Program provided St. Mary's Healthcare System for Children a grant to assess the need for services for the aging out medically fragile population in New York State, and to develop a pilot group home model for young adults with medical fragility. Young adults with complex care and medical fragility frequently face challenges finding care settings prepared to meet their unique needs. With limited skilled nursing facilities that serve their age demographic and a few group homes capable of meeting their complex clinical needs these young adults are often relegated to social isolation in institutional settings intended for the elderly or left to be cared for by their aging parents struggling with inadequate support.

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Recommended

Family Support Services Advisory Councils Info Letter (NYS OPWDD, 2018)

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Family Support Services Advisory Councils Booklet (NYS OPWDD, 2018)

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Bridges to Health

The Bridges to Health (B2H) Home and Community-based Medicaid services waiver program is designed to provide children in foster care who have significant mental health or developmental disabilities, or health care needs, with services to help them live in a home or community-based setting.


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SEFA

State Employees' Federal Appeal

Please consider donating to Parent to Parent of NYS during this year's State Employees' Federal Appeal Campaign.



A Family to Family Health Care Information & Education Center.

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A Message From Our Director




Added / Updated

Your Right to Vote in New York State: Individuals with Disabilities

Voting is an important part of being a U. S. citizen. The people who are elected this year will make decisions about things that directly affect your life, like your taxes, the education of your children and/or grandchildren, and changes in the laws of our state and nation. Voting is your chance to choose the decision makers and tell them what you want. To be eligible to vote in New York State, you must: 

  • be a United States citizen 
  • be 18 years old by December 31 of the year in which you register (note: you must be 18 years old by the date of the general, primary or other election in which you want to vote) 
  • live at your present address at least 30 days before an election 
  • not be in jail or on parole for a felony conviction 
  • not claim the right to vote elsewhere 
  • have registered to vote

Individuals with Disabilities: Your Rights - Brochure


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NYS Article 17-A Guardianship

In New York State, when a person becomes 18 years old they are assumed to be legally competent to make decision for themselves. This means no other person is allowed to make a personal, medical or financial decision for that individual. If a person is "intellectually disabled or developmentally disabled," has difficulty making decisions for themselves and over 18 years old, you can ask the Surrogate's Court to appoint a guardian for him or her. An Article 17-A Guardianship is available only for individuals who are "intellectually disabled or developmentally disabled." These are the legal terms used in Article 17-A of the Surrogate's Court Procedures Act.   An Article 17-A Guardianship is very broad and covers most decisions that are usually made by a parent for a child such as financial and healthcare decisions.  


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Yellow Dot Program

Yellow Dot is a free public safety program of the New York State Sheriff's Association designed to help first responders provide life-saving medical attention during that first “golden hour” after a crash or other emergency. A Yellow Dot in the driver’s-side rear window of your vehicle will alert first responders that vital medical information is stored in the glove compartment.


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Mariela Adams
​Kaitlin Stack-Whitney