Parent To Parent of NYS

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Our Mission

Parent to Parent of New York State builds a supportive network of families to reduce isolation and empower those who care for people with developmental disabilities or special healthcare needs to navigate and influence service systems and make informed decisions. 

Headlines and Highlights

I/DD Identification Cards Now Available

A new state law allows identification cards to help assist with emergency responders are now available to individuals with ID/DD needs through OPWDD. The cards are meant to be a means of sharing needs with first responders and others when communication may be an issue. Please note that these are not picture ID cards but could prove to be a valuable aid for our loved ones who require assistance when interacting with others, particularly with emergency personnel who may not understand their needs.  To obtain a card, complete the NYS OPWDD I/DD Identification Card Request Form

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OPWDD People First Care Coordination

The Office for People With Developmental Disabilities is making an important improvement to the way services are coordinated for people with intellectual and developmental disabilities in New York State, known as People First Care Coordination. Under this new model, the Medicaid Service Coordination (MSC) program which is currently used to help people plan their services will be replaced by a new and improved program called Health Home Care Management.


People First Care Coordination

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Family Support Services Advisory Councils Info Letter (NYS OPWDD, 2018)

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Family Support Services Advisory Councils Booklet (NYS OPWDD, 2018)

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Bridges to Health

The Bridges to Health (B2H) Home and Community-based Medicaid services waiver program is designed to provide children in foster care who have significant mental health or developmental disabilities, or health care needs, with services to help them live in a home or community-based setting.

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State Employees' Federal Appeal

Please consider donating to Parent to Parent of NYS during this year's State Employees' Federal Appeal Campaign.

A Family to Family Health Care Information & Education Center.

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A Message From Our Director

Added / Updated

152 Links Digest March 2019

Transition can be a time of great uncertainty. This month we provide some links to help navigate some big changes that your family may be facing. 

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151 Links Digest February 2019

Families of children with disabilities and/or special health care needs often have added expenses related to the care of their children. Here are some ways to help ease the financial burdens that families face.

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150 Links Digest January 2019

It is important that caregivers of those with disabilities have appropriate resources when working with Care Coordination Organizations/Health Homes (CCO/HH). This month's edition gives the reader the policy mandates that CCO/HH's have to follow and the methods of establishing data to determine whether an organization is bringing "value" to its members.

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149 Links Digest December 2018

It is open enrollment season for most health insurance markets, including those plans purchased through the NY State of Health Insurance Marketplace. This is the time of year when you can purchase health insurance and/or make changes to existing policies In this month's edition of Links Digest you will learn what questions you should ask when trying to select a health insurance plan that will best meet your needs. Please note that there are important dates for the NY State of Health Insurance Marketplace listed below.

Also, learn about the Developmental Disabilities Profile (DDP-2) and the role it plays in determining OPWDD services for an individual.   

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148 Links Digest November 2018

This months edition focuses on the NY State of Health Insurance Marketplace and dates for obtaining insurance. It is vitally important for consumers to know that the NYS marketplace is once again open longer than the Federal marketplace in order to ensure that consumers and small business owners have adequate time to weigh options and select plans for 2019. Please see document for specific dates regarding coverage. Also included in this edition is information on Life Plans and Health Homes under OPWDD.

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Your Right to Vote in New York State: Individuals with Disabilities

Voting is an important part of being a U. S. citizen. The people who are elected this year will make decisions about things that directly affect your life, like your taxes, the education of your children and/or grandchildren, and changes in the laws of our state and nation. Voting is your chance to choose the decision makers and tell them what you want. To be eligible to vote in New York State, you must: 

  • be a United States citizen 
  • be 18 years old by December 31 of the year in which you register (note: you must be 18 years old by the date of the general, primary or other election in which you want to vote) 
  • live at your present address at least 30 days before an election 
  • not be in jail or on parole for a felony conviction 
  • not claim the right to vote elsewhere 
  • have registered to vote

Individuals with Disabilities: Your Rights - Brochure

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NYS Article 17-A Guardianship

In New York State, when a person becomes 18 years old they are assumed to be legally competent to make decision for themselves. This means no other person is allowed to make a personal, medical or financial decision for that individual. If a person is "intellectually disabled or developmentally disabled," has difficulty making decisions for themselves and over 18 years old, you can ask the Surrogate's Court to appoint a guardian for him or her. An Article 17-A Guardianship is available only for individuals who are "intellectually disabled or developmentally disabled." These are the legal terms used in Article 17-A of the Surrogate's Court Procedures Act.   An Article 17-A Guardianship is very broad and covers most decisions that are usually made by a parent for a child such as financial and healthcare decisions.  

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Yellow Dot Program

Yellow Dot is a free public safety program of the New York State Sheriff's Association designed to help first responders provide life-saving medical attention during that first “golden hour” after a crash or other emergency. A Yellow Dot in the driver’s-side rear window of your vehicle will alert first responders that vital medical information is stored in the glove compartment.

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Mariela Adams