Parent To Parent of NYS

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Our Mission

Parent to Parent of New York State builds a supportive network of families to reduce isolation and empower those who care for people with developmental disabilities or special healthcare needs to navigate and influence service systems and make informed decisions. 




Michele Juda, Executive Director of Parent to Parent on NYS, joined Phil Bayly, anchor of News Channel 13 (WNYT) and host of Forum 13, on June 25, 2017, for a  discussion about Parent to Parent of NYS' Parent Matching program.



Headlines and Highlights

Redesigned website for the Family Iniative Coordination Services Project

The Bureau of Early Intervention and the Family Initiative Coordination Services Project announces a redesigned and update website for the Family Initiative Coordination Services Project, known as Partners. This website, a part of New York State Department of Health Bureau of Early Intervention sponsored contract with Just Kids Early Childhood Learning Center.

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Regional Coordinator Position in Hudson Valley Office

We are seeking a part-time Regional Coordinator in our Hudson Valley office, located at Westchester Institute for Human Development.  Additional information available through the link below.

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YOUTH POWER is seeking youth between the ages of 14-24

YOUTH POWER! is seeking youth to be members of a peer-run statewide planning group for AMPLIFY-NY! Youth and young adults with developmental and other disabilities ages 14-24 are invited to join this group to help design and plan regional youth leadership forums across the state, beginning with the pilot forum in the Capital District. Young people who are interested in joining this group can apply by clicking here.

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New York State Population Needs Assessment

In 2015 the Office of People with Developmental Disabilities Balancing Incentive Program provided St. Mary's Healthcare System for Children a grant to assess the need for services for the aging out medically fragile population in New York State, and to develop a pilot group home model for young adults with medical fragility. Young adults with complex care and medical fragility frequently face challenges finding care settings prepared to meet their unique needs. With limited skilled nursing facilities that serve their age demographic and a few group homes capable of meeting their complex clinical needs these young adults are often relegated to social isolation in institutional settings intended for the elderly or left to be cared for by their aging parents struggling with inadequate support.

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Recommended





Coding and Reimbursement Tip Sheet for Transition from Pediatric to Adult Health Care

Improving transition from pediatric to adult health care is a national priority, a medical home certification standard, and a meaningful use requirement for electronic health records. Health care transition encompasses increasing youth’s ability to manage their own health and effectively use health services. It also involves ensuring an organized clinical process to prepare youth and families for adult-centered care, transferring youth to a new adult provider, and orienting and engaging young adults in their own care. This link provides CPT (Current Procedural Terminology) billing codes that can be used for time spent with patients who are transitioning from pediatric to adult healthcare.


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Bridges to Health

The Bridges to Health (B2H) Home and Community-based Medicaid services waiver program is designed to provide children in foster care who have significant mental health or developmental disabilities, or health care needs, with services to help them live in a home or community-based setting.


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Community Health Workers and Children with Special Health Care Needs

The National Center for Community Based Services for Children With Special Health Care Needs and The HCS Foundation have collaborated to find ways of improving health and related services for children with special health care needs from traditionally underserved communities. The engagement of community health workers (CHWs) has emerged as a very promising strategy for addressing the persistent health disparities.. This report outlines the advantages of using CHW to reach families and identifies the assistance that these individuals can provide families in navigating the healthcare system.


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A Checklist to Keep Children Healthier

There are many aspects of healthcare that can be evaluated throughout a child’s development. This link provides a comprehensive list of screenings that are available to children from newborn through adolescence.


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SEFA

State Employees' Federal Appeal

Please consider donating to Parent to Parent of NYS during this year's State Employees' Federal Appeal Campaign.



A Family to Family Health Care Information & Education Center.

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A Message From Our Director




Added / Updated

Disability Resources - U.S. Dept. of Labor Office of Disability Employment Policy

Looking for resources for yourself or another family raising a child (or children) with a special health care need? The disability.gov website contains a number of local, state and federal resources for families of with children with special health care needs.


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Early Intervention Steps: A Parent’s Basic Guide to the Early Intervention Process

The New York State Early Intervention Program (EIP), part of the nationwide EIP, is a program for infants and toddlers under three years of age who have developmental delays, either from a disability or an unknown cause. To find out more about EIP services, check out the New York State Department of Health’s booklet entitled “Early Intervention Steps: A Parent’s Basic Guide to the Early Intervention Process”:


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Addressing Consumer Priorities in Value-Based Care

"Addressing Consumer Priorities in Value-Based Care” is a publication outlining how consumers and consumer advocates can be included in health care system redesign in a meaningful way. The document presents a strategy to get those most affected by the redesign to take an active role in the process.


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Transition to Adulthood:  A Health Care Guide for Youth and Families

Although approaching adulthood is an exciting time in any young person’s life, it is also a time of uncertainty. Like all youth approaching adulthood, individuals with special health care needs and their families need to plan for the future. This check-list thoroughly explains the many aspects to be considered when transitioning from adolescence to adulthood including worksheets for teaching one how to manage their healthcare.


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